Richard Engel has disclosed the passing of his 6-year-old son, who suffered from Rett syndrome

Richard Engel has disclosed the passing of his 6-year-old son, who suffered from Rett syndrome ...

Richard Engel has revealed the passing of his 6-year-old son who died of Rett syndrome.

Richard Engel, NBC News' senior foreign correspondent, reported on the sad news that his 6-year-old son had died. Engel and his wife had discussed the child's struggle with a rare genetic disorder openly.

Engel tweeted, "Our beloved son Henry passed away." He had the softest blue eyes, an easy smile, and a contagious giggle. He always loved us, and he returned it, and so much more.

Henry's parents noticed he was not meeting developmental milestones when he was just a few months old, according to a tribute posted on the Texas Children's Hospital website.

A mutation in the MECP2 gene was discovered, causing Rett syndrome, which is a condition that normally affects girls after their first birthday, robbing them of learned abilities, and causing them with cognitive impairments, speech difficulties, and motor difficulties, according to the hospital.

Henry has been receiving care at the Texas Children's Hospital's Duncan Neurological Research Institute since 2018.

Henry is unique in so many ways, according to Dr. Huda Zoghbi, who investigated his mutation at the institute.

From the moment I saw him, his warm and enticing smile, and the way he connected with his eyes, stole my heart, said Zoghbi.

Henry, our beloved son, died. He had the softest blue eyes, an easy smile, and a contagious giggle. We always surrounded him with love, and he returned it, and so much more. Mary and Richard. https://t.co/M8LV8SHv6r pic.twitter.com/21Ja6TOtjH

Engel tweeted on Thursday that researchers are making amazing progress with Henry's cells to help treat RETT Syndrome so others may not have to deal with this terrible illness.

Engel has been writing essays on the happy and sad times in the family's life in order to update readers on Henry's progress in 2018 and 2019.

Engel wrote later, in another article, about how he finally got a Dada.'

Researchers are making incredible progress by using Henrys cells to help with RETT Syndrome so that others may not have to deal with this terrible illness.

He wrote that it took a long time to complete and that it made it even sweeter an unexpected reward.

Engel posted a video of Henry at the end of May, with the caption taking a turn for the worse.

His condition worsened, and he developed dystonia, a term that he shared. He was in the hospital for 6 weeks, but is now back home and receiving support from his brother Theo.

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